Selasa, 18 Februari 2014

Disabled Pennsburg (PA) woman puts Google Glass to the test

Disabled Pennsburg (PA) woman puts Google Glass to the test

Sarah Brendle is will provide Google with input on how the device can help others with ALS.
Sarah Brendle was in her mid-30s — a typical married working mom with two young boys — when she began to notice weakness in her legs and a debilitating fatigue.

Consultations with several doctors led to a devastating conclusion: amyotrophic lateral sclerosis, also known as Lou Gehrig's disease, a degenerative disease of the neurological system that leads to paralysis and death.


Once the shock wore off, the Pennsburg woman started thinking about family milestones that might happen without her — soccer games played by her boys, Dillon and Eli, their birthdays, holidays.
                                
                                                                                                  
Fortunately, Brendle's disease has progressed slowly. Five years since learning she had ALS, that weakness is still there, but Brendle, now 40, can still walk and use her hands and arms. She also managed to have another child, Phoebe, who is 3.
The day will come, however, when she will find walking and even lifting her arm too difficult.
That's why she's excited to be participating in a beta test of Google Glass, which is essentially a wearable smartphone that can be operated with touch and voice commands. As part of development of the high-tech eyeglasses, Google is soliciting consumers' input, including the thoughts of people with disabilities.
As it works now, the wearer slips the device around the face like a pair of glasses. It can be worn alone or on top of prescription eyewear. Once the user starts it with a touch, he can activate applications with eye movement or a finger swipe on the side of the device. Information is projected as if viewed from a computer screen that is several feet away. It's not in the user's direct field of vision, so eyesight is not impaired.
It operates like a smartphone. Even with just a basic beta version, Brendle's Google Glass can take pictures, send messages and visit websites.
Brendle says it's "cool" to be part of the cutting edge of a new application of technology.
But in the not-too-distant future, Google Glass could allow people with ALS and other neurologic disabilities to perform daily activities and maintain independence, said Frank Hyland, vice president of rehabilitation at Good Shepherd Rehabilitation Network.
"It opens up the world to you," he said.
Brendle received the glasses last week from Alisa Brownlee, an assistive technologist at the ALS Association's Greater Philadelphia Chapter.
Not anyone can get Google Glass just yet. The company has some customers and so-called "Explorers" who request the early version of the device and, if approved, can buy it for $1,500. Brownlee said the foundation was approved and now is sharing it with Brendle and other people with ALS to get their feedback.
Brownlee looks forward to when Google Glass will help reconnect ALS patients to their communities, especially those who cannot afford adaptive vans costing as much as $40,000. If the individual is unable to get to an event, someone there can record a video of it and stream it to the user's Glass, where it can be viewed as it occurs. As any parent of a soccer player knows, fields can be far from parking lots, making attendance a big challenge for people like Brendle.
There are other obstacles. Snowy weather, for example, increases isolation for people with ALS.
"Some days, you don't feel you have the option to go out," Brendle said, noting that she's at high risk for falling any time.
Google Glass also could have practical, daily use too. Brendle said it could spare her the energy it would take to get up out of her seat to call her husband if she needs him when he's out of the house.
"I can tap it and send him a text saying, 'Can you come in five minutes?' Piece of cake."
Google Glass still needs tweaking before it can be embraced by all ALS users, Brownlee said. Some people with ALS cannot raise their arm to swipe it. Others have lost their ability to talk, rendering its voice activation useless. Those are challenges Google developers will have to overcome, she said.


One of the benefits Google Glass has over other technology is it doesn't require positioning, as eye gaze devices do, Brownlee said. That would help those who lose strength in their neck muscles and cannot keep their heads upright, she said. Eye gaze technology, first developed for military applications, uses an infrared light reader to give disabled people the ability to type with their eyes.
According to Hyland and John Grencer, administrative manager at Good Shepherd's technology program, Google Glass is one of a number of new devices that hold great promise for people with disabilities. The virtual reality headset called Oculus Rift may help those with limited control of their extremities, they said. Other technology in the works, but still far off, would use brain waves to command external actions.
They also foresee cloud-based software programs working with Google Glass that could help people with brain injuries remember to do daily tasks, or for those with autism spectrum disorders to recognize others' emotions.
It's all about finding ways to get technology to fit with human beings who have different needs and abilities.
                                                                                                  
"This has been the year of user interfaces," Grencer said.
Another benefit: Just as common technology like DVD players and smartphones got cheaper as they developed and attained market acceptance, so too will Google Glass. The current $1,500 price tag is expected to come down to around $500, they said. That's a lot more affordable and obviously a preferable option to an eye gaze device, which cost $30,000 a few years ago but still goes for around $7,500, Grencer said.
Google officials have been hazy about when a full retail rollout may occur, but it could be as soon as this year. They may soon have competition, as the Korea Times recently reported that Samsung is coming out with its version of wearable technology in the fall. Google's public relations staff did not return a message seeking further comment.
Meantime, Grencer and Brendle said Google should be commended for seeking input from a diverse group, including people with ALS.
The device certainly will "boost morale" among people with disabilities, Brendle said. Anything that increases their sense of security and independence will be embraced, she said.
"It gives them hope," she said, "because people with disabilities need something to be excited about."


Read more: http://www.mcall.com/business/mc-als-google-glass-20140216,0,654207.story?page=2#ixzz2tiBRirtQ
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Now a device to restore communication for brain-injured people

Now a device to restore communication for brain-injured people



brain cells


Here comes a fascinating device that allows people suffering with paralysis to control computers or a prosthetic arm using their thoughts alone. Researchers at SpeakYourMind Foundation, a nonprofit organisation in the US, with help from BrainGate lab at Brown University in Providence, Rhode Island, has developed this low-cost brain-computer interface to brain-injured patients.
‘We have also developed a prototype eye-tracking tool called ‘SYMeyes’ – consisting of a webcam – that allows brain stem stroke patients to answer yes or no questions by moving their eyes,’ informed Dan Bacher, founder and executive director of the Speak YourMind Foundation, in a press release.
The eye-tracker system costs about $30.  Comparable systems in the market cost about $10,000 to $15,000, Bacher said. Bacher has also developed a system that allowed people to spell words by controlling a computer cursor on a virtual keyboard – using signals from the BrainGate implant.  (Read: Oxygen therapy can reverse brain damage even years after stroke!)
The virtual keyboard also suggests word completions to speed up typing. Bacher, with a team of volunteers and students, develops low-cost, personalised eye-tracking and head-tracking technologies – using basic components available at most electronics stores, a laptop and custom software. (Read: High levels of oxygen in a pressurised atmosphere can treat brain damage – Israeli researchers)
‘We are helping restore communication to people who lack the ability due to stroke, amyotrophic lateral sclerosis (ALS), brain injury or other problems,’ Bacher was quoted as saying.
East Haven ALS sufferer, veteran won’t stop fighting

East Haven ALS sufferer, veteran won’t stop fighting




(Mara Lavitt ó New Haven Register) Robert Giammatti and his wife, Cindy, use a letter board for communication.










By Evan Lips, New Haven Register
Posted: |

(Mara Lavitt ó New Haven Register) Bob Giammatti, who has amyotrophic lateral sclerosis, also known as or ALS, or Lou Gehrig's disease, is helped by wife Cindy and CNA Cindi Grazio of West Haven tend to him.

                           
EAST HAVEN >> Robert Giammatti doesn’t know where it came from, this disease that slowly robbed him of his ability to walk, talk, drink or eat.

He spends his days confined to a bed. The only way he can communicate with his wife, Cindy, is by blinking his eyes, where one means “Yes.”

Giammatti has amyotrophic lateral sclerosis, the scientific name for the affliction that cut down baseball legend Lou Gehrig when the New York Yankees first baseman was just a few weeks shy of his 38th birthday.

Giammatti is 68. There’s a framed photo of Gehrig that hangs in the couple’s bedroom.

Giammatti is also a veteran of the military. The U.S. Department of Veterans Affairs has determined his condition is connected to his service, even though he never set foot in Vietnam.

“They (VA) never said what the connection is, but they did say it was connected,” Cindy Giammatti said Tuesday, during an interview in the family’s Farm Meadow Road home. “It’s almost as if they know something.”

A week earlier, Cindy Giammatti appeared before the Town Council to tell her husband’s story, to help convince members to pass an ordinance giving 100 percent disabled veterans like her husband a complete property tax exemption. There were times at the meeting when she paused to compose herself.

Council members voted unanimously to pass the ordinance, an option Connecticut cities and towns have under a new state statute. East Haven joins West Haven, Marlborough, Avon and East Hampton in enacting the ordinance, according to Town Attorney Joseph Zullo.

Mayor Joseph Maturo Jr., in a Jan. 30 memo, urged council members to pass it.

“I believe it is imperative that we honor those sacrifices and I believe that this ordinance, as allowed by state law, is the proper way to do so,” he said in the memo.

Cindy Giammatti left the meeting with a smile.

“It’s like she’s always winning these little battles,” said Cindi Grazio, a West Haven nurse who helps care for Giammatti.

Grazio, adjusting Giammatti’s ventilator, was referring to the time in October when Cindy Giammatti completed a mandatory ventilator training course in just two weeks.

“When he got the ventilator, we were at a hospital in New Britain,” Cindy Giammatti said. “I was warned, ‘You may never get your husband home.’

“I said, ‘First of all, you’ve never met me — he’s coming home.’”

First, she had to complete ventilator training. She was told the average trainee takes five months to finish the course, and even after that, many fail the test.

“The hospital told me that we set a record,” she said. “The couldn’t believe how fast we did it.”

For her, it’s a race against the clock. She does not know how much time she’ll have left with her husband.

“People ask me all the time about a timetable,” she said. “He may go three or four years or he may come down with cancer or pneumonia like anyone else.”

The Giammattis have been together 10 years. They fell in love following marriages that ended in divorce. Cindy Giammatti is 46. At the time, Giammatti was working as a custodian at Deer Run Elementary School, where Cindy’s children from her previous marriage went to school.

“The hard thing about this disease, and other people will say this, (is) we had a future planned,” she said.

From the bed behind her, Giammatti blinks once.

There’s the cabin in New Hampshire’s White Mountains that Giammatti built by hand. He was going to retire, and as soon as the couple’s children were up and out of the house, they were going to live up there.

“This cut that right down for both of us,” she said.

The hope right now, the one thing Cindy Giammatti said helps her husband look forward to another day, is that someday there will be a cure. But the rarity of ALS is also a hindrance.

“The other day on ‘Good Morning America’ everyone was wearing red for heart disease awareness,” she said. “Then in October everything is pink for breast cancer.

“There’s nothing for ALS.”
Behind her, Giammatti blinks once.

Cindy Giammatti said raising awareness is the biggest reason she and her husband allowed an interview at their home. There’s only one drug available that’s specifically aimed at slowing down the onset of ALS: Riluzole. It has provedto lengthen survival by several months, but does not reverse motor nerve damage.

Cindy Giammatti said her husband first noticed something was wrong after he backed a maintenance snowplow into a light post during winter 2010. His head jerked back, jostling his neck. Doctors discovered his left arm had become weak. Giammatti said they attributed the weakness to whiplash sustained during the accident, but physical therapy did nothing to improve his strength.

“At the same time I noticed his speech was becoming a little garbled, almost as if he had a little Novocaine in his mouth,” she recalled.

“I think he knew all along that there was something really wrong, that this was something serious, but he didn’t want to tell me, didn’t want to upset me.”

Behind her, Giammatti blinks once.

Cindy Giammatti almost began to cry when she was asked to remember some of the last words her husband said before ALS robbed him of his ability to speak.

“It’s funny you should ask that,” she said. “One of the hardest things I have trouble with is not hearing his voice.

“I cannot remember what his voice sounds like.”

But she knows he is listening.

When more than blinking is need to communicate, Cindy Giammatti pulls out a poster board outfitted with an alphabet grid. She’ll walk her husband through a series of yes or no questions about a specific letter.

“What do you think of your wife, Bob?” asks Grazio.

“I--L-O-V-E--H-E-R.”
An interaction that takes other couples a split-second occupies a few minutes for the Giammattis.

The breaking point for Cindy Giammatti, the moment the cruelty of her husband’s diagnosis finally set in, was in late 2011. She recalled a visit to a physical therapist in New Britain. Her husband was still walking and talking.

“But the therapist put a pegboard and a set of golf tees in front of him,” Giammatti said. “He had to pick up the tees and put them in the holes.

“When I saw him struggling to pick up the tee, and he couldn’t, it hit me so hard.”

He lost the use of his hands shortly thereafter, followed by the use of his left arm. Speech then slowly went away.

“But it was like when you have a baby that begins to speak at 2 or 3, and only a parent can understand,” Giammatti said.

He finally relented and agreed to be fed via a tube after a noticeable loss of weight. Giammatti said one of her husband’s favorite treats had been Dairy Queen’s Strawberry Blizzard.

Grazio laughed when she recalled Giammatti’s reluctance to go with a feeding tube.

“He’s Italian,” she said. “The man loves his food.”

About eight months ago, Giammatti all his motor skills. The VA, Cindy Giammatti said, has helped her family immensely. There were grants to renovate the house so her husband could receive care at home. The property tax exemption will certainly help, she added.

But she’s still wondering how her husband’s ordeal can be connected to his military service, when nobody will tell her the connection.

“They’re taking the responsibility for his ALS,” she said. “But what does it mean?”

Last spring the ALS Association released a report titled ALS in the Military: Unexpected Consequences of Military Service. The report outlines several studies, chief among them a Harvard University project conducted between 2005 and 2009, that determined all military veterans, “regardless of branch or era of service are nearly twice as likely to develop ALS.”

On Nov. 4, 2009, the VA officially updated its regulations to recognize a “presumption of service connection for ALS for any veteran who develops the disease at any time after separation from service.”

The organization is still lobbying Congress to fund research that will answer the question of why military veterans are more prone to the disease.

Meanwhile, the Giammattis are still waiting and praying a cure will arrive in time. Yet as they wait, coping with Giammatti’s affliction the best way they know how, their own love story is still being written.

Cindy Giammatti spends her nights sleeping in a twin bed a few feet away from her husband’s master bed. She will jerk awake at night if she hears her husband’s ventilator change pace, meaning he, too, is awake. He cannot call out to her for help, so Giammatti has used her sense of sound to determine when he needs help.

“It’s been like this for seven or eight months,” she said. “And although it’s tough, there’s no place I’d rather be than by his side.”

Behind her, Bob Giammatti blinks once.



Selasa, 14 Januari 2014

Webinar: Assistive Technology Consideration in the IEP

Webinar: Assistive Technology Consideration in the IEP

Every student on an IEP must have assistive technology considered, unfortunately, this does not always happen properly. This webinar will discuss what should happen to properly consider AT in an IEP meeting and will show several examples of consideration forms used in various states that can help guide the process. Attending this webinar will make you better equipped to consider AT in the IEP process.



http://www.resna.org/professionalDevelopment/2014-webinars/assistive-technology-consideration-in-the-iep.dot







Robbed of the ability to walk and talk, writer blinks her stories

The Eye Tribe demonstrates eye tracking technology on an Android smartphone with Fruit Ninja
Read more at http://thedroidguy.com/2014/01/the-eye-tribe-demonstrates-eye-tracking-technology-on-an-android-smartphone-with-fruit-ninja/#gTyiuXHwCCMHGW3j.99
The Eye Tribe demonstrates eye tracking technology on an Android smartphone with Fruit Ninja
Read more at http://thedroidguy.com/2014/01/the-eye-tribe-demonstrates-eye-tracking-technology-on-an-android-smartphone-with-fruit-ninja/#gTyiuXHwCCMHGW3j.99

The Eye Tribe demonstrates eye tracking technology on an Android smartphone with Fruit Ninja

Posted on Jan 13 2014 - 8:45am by Valerie Richardson
eye trackingThe folks from The Eye Tribe have been working on their gaze/eye tracking bars for an year now. The team has now displayed their gaze tracking technology in the form of an infrared powered micro-USB dongle for Android smartphones. This demonstration includes playing Fruit Ninja solely using gaze tracking and no use of hands, which is quite a cool feature for this day and age. The purpose of this technology is to make touchscreen devices more easy to use by limiting the use of hands. However, this technology is still in its infancy and The Eye Tribe is only marketing this new product as a proof of concept rather than a user purchasable device.
The makers reportedly want manufacturers to adopt this technology right within the core of their devices instead of having to use it as an external accessory. The Android dongle isn’t available for sale at this point unfortunately, although the PC or Mac compatible eye tracking bar is available for purchase with a $99 price tag through its website.
We have seen Samsung make tremendous inroads with the eye tracking technology through its devices over the last couple of years with features like Smart Stay, Smart Scroll etc which judges the eye movements of the user. The upcoming Galaxy S5 handset is reported to feature an Iris Scanner, which will be Samsung’s answer for the fingerprint scanner.

Source: Android Central

Read more at http://thedroidguy.com/2014/01/the-eye-tribe-demonstrates-eye-tracking-technology-on-an-android-smartphone-with-fruit-ninja/#gTyiuXHwCCMHGW3j.99


A Toronto woman with Lou Gehrig's Disease uses a device to blink out the letters and punctuation in her short stories and poems.


It is a labour of love. It is one of the few things she has left.

Since 2009, amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, has robbed Zehra of the ability to walk, talk, eat and bathe herself.

She retains control only over her eyes and bladder. Eventually the neurodegenerative disease will kill her.

She is one of between 2,500 and 3,000 Canadians living with ALS. There is no cure and no treatment. Most patients diagnosed die within two to five years.

Zehra, 48, has now lived four years, but at cost.

“It’s been hell,” said her husband Sinan. “It’s a death sentence.”

Every year Zehra lost another ability — to walk, to talk, to swallow — and Sinan fell into a deep depression and developed his own health issues.

“In two years time she was totally wiped out,” he said and so was he.

Sinan uses a walker to get around, his diabetes is particularly bad now and he is on disability; money is tight.

“Most of our friends abandoned us. They just wouldn’t show up and I would say why don’t you come visit? She misses you, she’s a normal person and they’d say, ‘Oh we couldn’t stand seeing her like this,’ ” he said. “That really sort of pissed her off.”

It also triggered Zehra’s writing, which she posts routinely on her website.

“It is relaxing,” she said.

She speaks the same way she writes, using a DynaVox EyeMax System.

The device, which looks like a computer monitor and is attached to a table, tracks her eye movements. Once she’s looking at it, a blink will select the letter, serving as a click of the keyboard. A computerized voice then vocalizes Zehra’s words.

Writing a single short story can take hours.

She writes in Turkish, her native language, and has won a few short story awards for her work in Turkey. The couple hopes to turn the short stories and poems into a book.
New friends and supporters translate the stories into English, French and German. Zehra doesn’t edit and doesn’t erase; Sinan goes through and corrects any errors.

She isn’t the first person to blink-write. Jean-Dominique Bauby used blinking to write his memoir, , which was later turned into a movieThe Diving Bell and the Butterfly, which was later turned into a movie.

Some of Zehra’s stories are also very personal, some functioning as love letters now that she can no longer hug or kiss her husband.

“The treasure for my eyes, the light for my darkness, companion of my hardships,” wrote Zehra of him in one piece. “My doctor, my nurse, my arms and hands, my legs and feet, my voice.”

“I’m honoured,” he said, wiping away a tear. “It’s tough, it’s quite difficult to talk about, things are not normal. I thought it was tough before but it’s tougher now.”

The couple is now trying to raise $10,000 for ALS Canada, money that will go to improving quality of life for those with the disease as well as research for a much hoped for cure, at minimum treatment.

Zehra is nothing short of inspirational, said Dav Cvitkovic, vice-president of fund development and marketing for ALS Canada.

“What this story says is that despite having such a devastating disease (people) persevere no matter what,” she said.

Senin, 13 Januari 2014

With the Blink of an Eye--a Canadian women does not let ALS take her spirit

With the Blink of an Eye--a Canadian women does not let ALS take her spirit

Our Toronto: With the Blink of an Eye

ALS robs patients of movement, speech -- and very quickly -- LIFE. It is a disease that nearly a thousand Ontarians are battling right now. And there's no known cause, and no cure. But one Toronto woman is refusing to be trapped inside her body. Nil Köksal explains how she's creating a new life for herself.

https://www.youtube.com/watch?v=1KCkn_zlVzs&feature=youtu.be
PALS Joh Imber and Message Banking

PALS Joh Imber and Message Banking

Many may have seen early posting related to the Message Banking Model created by Costello at the ACP where many people with neurodegenerative conditions have banked hundreds of legacy messages prior to losing the ability to speak and the messages in their own voice are then incorporated into communication technology. In this video, the artist Jon Imber demonstrates how he has modified his method of painting and entered a new chapter in his career secondary to ALS. Jon has... also participated in the Boston Children's Hospital Augmentative Communication Program model for Message Banking his voice. He now has hundreds of personalized words, phrases and comments incorporated into technology using his own biological voice (a brief glimpse of this at the start of the video) He also completed the Model Talker project and has a synthetic voice for generative messages that approximates his biological voice. For more information on Jon' work, go to http://jonimber.com

http://youtu.be/0xRWmxhDBQI